Listening to Experience: Opening Up Democratic Partnerships in Mental Health: An Open Letter and Petition
Page updated 28/05/2008
Dr Ben Gray, academic and voice hearer has drafted a petition an open letter entitled 'Listening to Experience: Opening Up Democratic Partnerships in Mental Health', this initiative is intended to draw attention to the need to place the person with mental health problems and their experiences at the forefront of mental health care, ensure their human and medical rights and consider new and innovative methods for coping more insightfully with mental health problems.
If you would like to help with the drafting process or express your support contact us at admin@intervoiceonline.org. or make your views known in the comment box below.
This is the open letter:
"Having a mental health problem is a difficult and frightening experience. To complicate matters, people with mental health problems often experience discrimination, stigma and social exclusion, both by other people in society who do not understand mental illness and by professionals, such as psychiatrists, nurses and social workers, who require more patient-centred and appropriate training and education on key issues in mental health.
There is a reliance within mental health on the prescription of powerful antipsychotic and pharmaceutical medication, with little recourse to alternative and less invasive treatments. In some circumstances, medication can be forcibly administered to people with mental health problems against their wishes and consent.
More recently there has been a growth in research and psychiatric understanding, outlining alternative methods for coping with mental health problems, such as hearing voices. In this alternative and modern approach, symptoms such as hearing voices are discussed and related to peoples’ experiences, rather than discounted as delusions and falsehoods. The voice hearing experience is accepted so as to be listened to and discussed in relation to peoples’ histories and personal stories.
It is imperative that we take account of the experiences of people with mental health problems, so as to provide more patient-centred, humane, holistic, collaborative and human-rights based mental health care.
There are five chief recommendations in order to begin such a collaborative and listening process:
1.Alternative approaches to mental illness should be thoroughly covered in mental health training and education by professionals such as psychiatrists, nurses and social workers. The work of Romme and Escher and others involved in the hearing voices movement outlines such alternative and effective approaches to conventional interventions.
2.In order for professionals to engage, empathise and effectively collaborate with people with mental health problems in their practice there should be training and education programmes available to professionals that are run by people who have experienced mental health problems. Experience is often said to be the greatest teacher. Experience is expertise. Listening to the experiences of people with mental health problems will provide professionals from the health, social care and voluntary sectors with a broader and more empathetic perspective as well as opening up the pathway to more holistic and democratic care.
3.The use of advance agreements or advance directives with people who have mental health problems should be encouraged, so as to open up more democratic pathways of treatment and care in collaboration with mental health teams and consultant psychiatrists. The use of advance agreements enables the person with mental health issues, when they are stable and well, to stipulate their preferred method of treatment at a future date when considered unwell or mentally ill.
4.To ensure full collaboration as well as consistent and humane care a person who has experienced mental health problems should be appointed to all Mental Health Tribunals. This will ensure that the person with mental health problems is better represented legally and ethically by a peer.
5.A review of the efficacy, debilitating side-effects and alternatives to medical treatment should be conducted in order to begin to assess new and less invasive methods of helping people to cope more insightfully with mental illness.
The key aim is to place the person with mental health problems and their experiences at the forefront and centre of mental health care, ensure their human and medical rights, give them a democratic say in their care and consider new and innovative methods for coping more insightfully with mental illness."
Comments
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I liked your site.
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I've spoken with two angels (as well as a rank of demons who are horrible and say disgusting things). The 2 main things that I remember the angels saying: "Don't forget you're not the only one suffering down here, Ben" and "All the little children go to heaven. You should see how happy they are!". The angels told me that there's no hunger, tiredness, illness and thirst in heaven (You never get hungry, thirsty, ill or tired, because you are filled and alive with the Holy Spirit). Sounds crazy, I know- I was an atheist up until 2003, but the angels encouraged me to pray for everyone. Maybe we all need a miracle? Keep fighting for the good, Ben
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This is a very good forum for voice hearers and they are very nice and supportive: http://health.groups.yahoo.com/group/voice-hearers/
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This is going to sound really crazy but I have heard voices, mainly demons, saying "I'm coming". I fear that the anti-Christ is coming because of me. I'm not hungry, tired, although I am thirsty (the angels said that you have no hunger, tiredness or thirst in heaven). God also spoke to me once and said: "I can't come to you; You have to come to me". The angels and demons also told me about some things that were going to happen in the future that have since happened. This is going to sound mad but they told me about 9/11 and the Swine Flu. The demons tricked me with 9/11, as I was an atheist and didn't believe in God, Satan or that it was possible to see the future. God wanted me to stop 9/11 and the demons told me because they knew I'd forget and would blame myself for this atrocity and the two wars in Iraq and Afghanistan in which hundreds of thousands of people have died. I believe I warned people about the Swine Flu, because when I told one person in a busy street in London, I trusted her and she said 'Tell them', which I shouted out to everyone. The angels said that one of them (a believer who was going to heaven) would warn us, so I guess that's why we've been expecting a pandemic virus for a few years before Avian and Swine Flu got here. Anyway, I'm saying all this, not to make myself look special or good, but because whenever I feel like telling people, I know that they're just going to say I'm crazy and such things aren't possible. I think the angels want me to stop eating, sleeping and smoking, at which point they've showed me that that I will be hanged on a tree (It says in the Bible that anyone cursed by God will be hanged on a tree, like Judas Iscariot). But this is the only way, I think, that I can stop Satan escaping his cage and coming here to earth (and also set myself free). Of course, I just want to live my life like everyone else and eat and drink and enjoy life as much as possible. I wrote to the Archbishop of York and got a letter back saying I just need to have faith, hope and trust in God- that we are all sinners and my voices/ demons are just a journey of faith. Of course, I know this all sounds unlikely and mad, but what do you think I should do? I just want to get on with my life, but if Satan escapes his cage then it's going to be a bloody battle and I will be responsible. The voices/ demons have been threatening me for years, especially when I go to Church or pray, so I'm not frightened so much, but obviously very frightened that Satan will escape his cage and persecute humanity. When I pass people in the street, some also touch their mouths and point down at the ground (a warning which means that if I eat I will go to hell). It sounds mad, but what do you think about all this and what would you do?
