At Intervoice, we receive a number of enquiries from researchers who are looking for people with personal experience of hearing voices to participate in, or advise on, their research. Once we have had the opportunity to review these opportunities, we will use this page to tell you about those we feel compliment Intervoice’s values.
Each of these researcher’s work independently of Intervoice – so take time to look at the information they have given and make an informed choice about whether or not you want to get involved. Researchers should always treat participants with respect, carefully explain the purpose of the study and ensure you feel comfortable to withdraw at any time.
We are currently working on guidance for researchers to help them involve voice-hearers in an inclusive and respectful way as we believe this is an essential part of good quality research. So, if you take part in any of the research detailed here, you may want to email us and tell us about your experience of it.
Current Research Opportunities (please note these are not directly linked to Intervoice)
Exploring the Content of Voice Hearing.
For those who experience the phenomena of hearing voices, it can be extremely distressing and have a major impact on their ability to go about daily life. Recently, psychological research has begun to explore the phenomena of voice hearing in more depth. By more fully understanding these experiences, the better the psychological and voice hearing communities become at managing and overcoming these experiences. Other research has addressed the occurrence of voice hearing across multiple psychiatric conditions and the characteristics or properties that may be associated with the voices heard.
However, our study is unique in that we are attempting to gather examples of what exactly a person hears when they hear voice. From these examples we intended to analyse the properties of the language used and how these properties may relate to the characteristics of that voice. A study of this kind has not yet been conducted and we are hopeful that it may give us a great insight into the phenomena of hearing voices by more fully understanding exactly what the voices say.
All data collected by this study will be stored in accordance with the provisions of the Data Protection Act 1998.
Please click the link below for more information and if you would like to consider taking part in our study: https://uclpsych.eu.qualtrics.com/SE/?SID=SV_5j19KZVuI5vHZuR
Self-compassion, mindfulness and distressing voices
The purpose of the study is to investigate ways people cope with the experience of hearing voices others cannot hear.
It is hoped that the results will help in understanding how to provide more effective therapies for people who hear distressing voices.
Who can take part?
To take part you need to:
- Be over 18 years old
- Be able to read written instruction in English
- Have heard voices that others couldn’t hear
What will I be asked to do?
You will be asked to complete a set of online questionnaires by selecting responses from a list, including questions about your experience of hearing voices and how you relate to yourself and others. It is up to you how much information you provide.
It is anticipated that this will take between 20 and 30 minutes.
If you choose to leave your contact details you will also be entered into a prize draw with a chance of winning one of six £25 Amazon vouchers.
Click on this link if you’re interested to complete the survey or to find out more:
Voice-hearer’s work-related experiences
Hello. My name is Lisa Craig. I am an occupational therapy student at the University of Brighton. I am inviting you to take part in a research study exploring voice-hearer’s experiences of work.
The title of the study: Work-related experiences of people who hear voices – an occupational perspective.
Research tutor’s contact details: Dr Josh Cameron, Email: [email protected]
The purpose of the study: This is an MSc research study which seeks to understand how hearing voices impacts on people’s experiences of employment. Current research suggests that coping with hearing voices, amongst other things can make it difficult for people to get or keep jobs. However the research doesn’t explore this in any depth. I am hoping to improve the understanding of how hearing voices impacts on people’s employment opportunities and experiences.
I am looking for voice-hearers to write about their experiences
(During June 2015)
I am looking for up to 12 voice hearers aged between 18 and 65. You will be able to take part in this study if you are aged between 18 and 65, and you have had first-hand experiences of hearing voices regularly. You would need to have some experience of work (paid or unpaid), and be living in the community. I would ask you to explore your experiences of voice-hearing in a diary. If you are willing to share these experiences and interested in writing about them, please email me [email protected] I am looking for people who are willing to write about their experiences for a period of 4 weeks. You can write in it as often as you like. It doesn’t have to be every day. It is up to you.
Do I have to take part?
Only take part if you want to. Taking part is completely up to you. If you need any further information, please email me [email protected]
You are free to withdraw at any time, you don’t have to say why.
What will happen if I decide to take part?
If you decide that you would like to take part, please give your consent by completing and emailing me your consent form. [email protected]
I will email you an electronic diary.
What are the possible disadvantages and risks of taking part?
You might write about positive experiences and negative experiences. It is possible that whilst writing about difficult experiences, you might feel upset. You are advised to think about identifying someone you can trust and talk with just in case this should happen. If you are using mental health services, it would be advisable to tell the person you see that you are taking part in some research which involves writing about your experience of hearing voices and work. Another support may be your GP. An independent support organisation is listed at the end of the participant information sheet.
What are the possible benefits of taking part?
You may not benefit directly from taking part in this study but the information you provide will help improve the understanding of the lived experience of hearing voices. An understanding of how this impacts on what people do in work-related situations may improve employment opportunities for voice hearers. You may feel some benefit from writing about your experiences.
About the diary
In the diary I will ask you to give some information about yourself, including your age, gender, and education. I am interested in how long you have heard voices for, how often you hear voices, whether they are positive, negative or commanding and whether you find it easy or difficult to cope with the voices. The diary will ask whether you have a mental health diagnosis, use mental health services, and/or attend a hearing voices group run by the hearing voices network.
Writing the diary
Please write in the diary for two to four weeks. It is possible that in reflecting on and describing your experience of voice-hearing you may experience difficult voices and/or negative feelings. You may also end up talking about experiences you had not explicitly planned to talk about. If you feel yourself becoming distressed, I recommend that you stop writing the diary. If you need to seek support, sources include: The Samaritans (UK): Tel: 08457909090. This service is available 24 hours a day, 365 days a year.
If you are away during this time, please let me know. During this time, you can contact me to discuss how it is going. You can email me what you have written so far. I can support you to keep the writing focused on how hearing voices influences doing work-related things. We can agree to do this by email or phone, whatever works best for you.
You can write as much as you like. I am looking for people who enjoy writing about their experiences. It is important to explore your experiences in depth, so detail will be welcomed.
In your diary I will give you some guidance about what to write about.
I am interested in your day to day experience of finding work and working.
When you have finished writing please email me your diary. I will read the diary and then email you to explain my understanding of the main issues that you wrote about. I will ask you to comment on whether or not you think my understanding of your experience makes sense.
Will my taking part in the study be kept confidential?
Your writing will be read only by the researcher and the research supervisor. Some of your words may be used in the write up of the study. This is a very powerful way to communicate people’s experiences. However we would not use your name, no one will know who said what. If your words are used, you will be given another name in the report so that nobody can know it was you.
The electronic diaries will be password protected and stored securely on the University computer server. Identifiable data will be destroyed in September 2015, however anonymised data may be kept at the University for up to ten years.
What will happen to the results of the research study?
This research will be written up as a dissertation paper by the end of August 2015 and possibly published in the future. You will not be identified in any report.
Who has reviewed the study?
This study has been reviewed and approved by the Health and Social Science, Science and Engineering Research Ethics and Governance Committee at the School of Health Sciences, University of Brighton on April the 7th 2015.
Is there any incentive to take part in this research?
Your time and knowledge is recognised and valued, however, unfortunately payment cannot be offered for your time and expertise as this study is part of an MSc course which does not have a research budget.
Thank you. Lisa Craig.