Research Requests

At Intervoice, we receive a number of enquiries from researchers who are looking for people with personal experience of hearing voices to participate in, or advise on, their research. Once we have had the opportunity to review these opportunities, we will use this page to tell you about those we feel compliment Intervoice’s values.

Each of these researcher’s work independently of Intervoice – so take time to look at the information they have given and make an informed choice about whether or not you want to get involved. Researchers should always treat participants with respect, carefully explain the purpose of the study and ensure you feel comfortable to withdraw at any time.

We are currently working on guidance for researchers to help them involve voice-hearers in an inclusive and respectful way as we believe this is an essential part of good quality research. So, if you take part in any of the research detailed here, you may want to email us and tell us about your experience of it.

Current Research Opportunities (please note these are not directly linked to Intervoice)

Maastricht World Survey On Antipsychotic Medication Withdrawal

www.antipsychoticwithdrawalsurvey.com (translations available soon)

Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications?

And did you ever stop taking antipsychotics, or try to stop taking them?

Are you 18 years or older?

If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them.

The survey aims to improve mental health services by better understanding medication withdrawal.

Lead researcher is Will Hall, a therapist, PhD student, and former patient who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input.

The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal.

Any questions?

Please contact [email protected], +1 (413) 210-2803

Want to help spread the word about this survey? Please share the survey link with your friends and networks:

www.antipsychoticwithdrawalsurvey.com

You can also share via Facebook and social media:

www.facebook.com/maastrichtantipsychoticwithdrawalsurvey

How Do Hearing Voices Peer-Support Groups Work?

United States FlagThe US continues to lag far behind other countries in the development of Hearing Voices groups, and while the number of groups continues to grow, there is still so much more to be done to spread the approach – it’s a big country! – and to get greater acceptance from mental health professionals.

So a team of voice hearers and researchers based at Mount Holyoke College in Massachusetts is conducting a study designed to provide more detailed information about people’s actual experiences in Hearing Voices groups.

The goal of the study is to identify the specific characteristics that make these groups so effective for so many people. With a clearer evidence base, the researchers hope to foster wider acceptance of HVN’s approach among clinicians and other mental health professionals in the US and, most importantly, to encourage the development of more groups.

Dozens of voice hearers around the country have already sent in their responses; if you or someone you know:

  • lives in the United States
  • is at least 18 years old
  • has participated in a Hearing Voices group
  • and not yet completed the survey

Please check out the survey at: https://www.ourvoicesraised.org

If you have any questions about the research, please don’t hesitate to contact the Project Director, Gail Hornstein, at [email protected].

One response to “Research Requests”

  1. James Eddie

    Research should focus on the technical descriptions of mental sound and voice production, to educate through “deconstructionist of media” and to study “voice” methodology as it relates to conflict and the production of provocation during the somewhat intolerable experience of daily mental health abuse that is chronic in nature, unobservable to others, and known only through testimony of the patient. Most professional research has entirely avoided trying to identify anything about the voices themselves, or that “they” coordinate strategies common to every patient…

    Overall, the severe condition of schizophrenia is in need of an accurate and full technical description, including predictable and repeatable mental health moments that relate to conflict studies, negotiation, bargaining, and knowledge of the voices these people “hear talking,” and who they are “talking to,” insofar as some talk but do not stalk and some stalk but do not talk, and advice about what to do in situations of extreme provocation connected to criminal intention and motivations that unfold over short and long durations of time, as well as appropriate and acceptable accommodations for a life of auditory abuse and the inability to work or maintain relationships under conditions of remote viewing and perceptual stalking known to be a major mental disability in need of constitutional protection.

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