Hearing Voices Movement: how we work together 0
Updated 07/11/2007
INTERVOICE works differently from many other organisations, we regard ourselves as an alliance of people who share a common cause, in this article we explain why.
Working in partnership:
Bridging the personal and professional:
Incorporating the knowledge of experts by experience:
Participation helps individual recovery processes, including for workers:
Encouraging diverse understandings:
Psychosis Seminars: The Trialogical Approach:
Useful links:
Working in partnership: Experts by training (workers and academics etc) and people who are experts by experience are encouraged to work together, this means that national representatives from the 19 hearing voices initiatives around the world are invited to our annual working meetings as “pairs” or "groups". The expectation is that these pairings/groups are ongoing long-term working relationships (as in working together as equals) that continue outside of the meetings and that the couple/group prepare their presentations together. The advantage of this arrangement is that the perspectives of both the expert by experience and expert by training are included in all discussions and thereby feed into the decision making processes of the organisation.
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Bridging the personal and professional: The belief that we do not need to maintain a worker/psychiatric survivor divide has been a very significant contribution to the success of INTERVOICE as an organisation and sets it apart from many other agencies and services working on mental health issues. The process is simple and involves the members (experts of experience and experts by training) committing themselves to bridging the worker/psychiatric survivor divide and developing real relationships with each other, as a result long term friendships have subsequently developed. This is more easily accomplished than might be imagined, having common cause and placing a stress on the equal value of everyones participation tends to breakdown the worker/psychiatric survivor user divide and gives space for a very different way of working and being together.
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Incorporating the knowledge of experts by experience: We recognise people who hear voices have significant knowledge, although often have few opportunities to disseminate their knowledge. A key function of INTERVOICE is to develop experiential knowledge and to disseminate this with the objective of transforming mental health care to recovery and resilience oriented support. In our view experiential knowledge is equal to scientific knowledge. Persons with “psychiatric histories” own this knowledge and its value, including financial value should be recognised. For example, when voice hearers speak at workshops and conferences, we ensure they are paid the same fees as preofessional speakers (for instance psychiatrists).
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Participation helps individual recovery processes: and this, most especially, includes experts by training: Participation in INTERVOICE by experts by experience has proved to be beneficial to those involved including the experts by training, in effect the community development and educational approach has proved to have had unintended therapeutic value. For example experts by training have revealed that they have heard voices for the first time and experts by experience have been able to support them.
We repeatedly point out that we work together with people with histories of so called severe mental health problems, “the real patients”, in the language of mainstream mental health. This is significant for two reasons, firstly this is because articulate, coping voice hearers tend to be written out of the story as unlike “real patients” and secondly because, although people often join INTERVOICE with a “diagnosis” as their identity, the process of membership often leads to significant change in peoples’ perception of themselves as contributors and as whole people.
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Encouraging diverse understandings: A key approach of INTERVOICE is the focus on seeking to change societies attitudes about hearing voices and the belief that this will lead to a change in psychiatry (we use the analogy with homosexuality and psychiatry). The group considers personal, political and spiritual understandings re. voices as having equal validity and invite presentations from anthropologists, spiritualists, psychiatrists, psychologists, voice hearers etc. We use poetry, music, dance to intstill a creative atmosphere at the meetings and enjoy a meal together at the end of meetings. We value and recognise participation in meetings with tokens of gratitude such as flowers and small gifts. We always meets in non-Medical settings, often in “valued” buildings, most memorably perhaps was a meeting held in the ancient Town hall in Florence.
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Psychosis Seminars: The Trialogical Approach: Many of these ways of working are shared by the Psychosis Seminar movement in Germany. The Seminars are "trialogical" meetings, which means that psychosis-experienced people, their relatives and friends, and professionals from the mental health sector meet up to discuss issues concerning psychosis. Everybody is considered an expert of their experiences and everybody’s different perspectives on psychotic states are valued as equally meaningful and important.
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Useful links:
Expert advice?
Service users and patients are now heralded as "experts by experience", and one project is collating user expertise from around Europe with the aim of producing a qualification enabling users to work in mental health. But is it all worth the time and investment, asks Adam James from Psychminded
Ex-In
(EXperienced INvolvement) is a pilot project funded by the european Leonardo da Vinci Program. The project aims at the qualification of people with lived experiences in mental health distress to work as a supporter in mental health services or as a trainer for mental health professionals. In the frame of the project experienced people, mental health professionals and trainers from six european countries are working together to develop a specific training which is focused on the experiences of the participants.
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More about INTERVOICE here
Press Release: Celebrate World Hearing Voices Day and 20 years of achievement, 14th September 2007 0
Page added, 14/09/2007
Today, INTERVOICE, the International Network for training, education and research into Hearing Voices, holds the second World Hearing Voices Day.
2007 marks the 20th year of achievement since the hearing voices movement took its first step, when in 1987, Dutch voice hearer Patsy Hage challenged Marius Romme, her psychiatrist, with her criticism of his clinical approach to her voices. She pointed out that rather than using voices only in order to make an illness diagnosis it would be more useful if he helped her learn to cope with the experience. He listened, acted and the rest is history. From this beginning INTERVOICE, has grown into an international network with 19 participating countries.
As Marius Romme, the President of INTERVOICE recalls:
In 1987, I had no idea the impact that the discovery that accepting and making sense of voices was a helpful alternative was going to have. Yet, after twenty years of work we have built a unique and formidable movement of voice hearers and allies that has brought about a big change in the way hearing voices are regarded and has found new ways of helping people overwhelmed by their voices."
The international awareness day intends to combat the secrecy and stigma surrounding hearing voices. The aim is to celebrate voice hearing as part of the diversity of human experience and raise awareness of the fact that hearing voices, in and of itself, is not a sign of mental illness — indeed many people hear voices, such as painters, author’s, spiritual mediums and others are sought after, for their voice hearing capabilities.
Each year Hearing Voices Networks and Groups worldwide mark the occasion with an activity or event to:
The centrepiece of this years celebration is a conference being held in London, hosted by Together, an organisation based in the UK that works with people who have mental distress, to help them get what they want from life – and feel happier. This conference aims to bring together experts with experience of hearing voices and professionals to share their understanding of voice-hearing and to explore exciting new non-medical ways to work with voices.
Launching World Hearing Voice Day. Professor Marius Romme said:
"Typically, in Western medical thinking hearing voices has always been associated with mental illness and frequently seen as a symptom of schizophrenia. Yet, we discovered many people who hear voices do not have a mental illness and never seek help. For this reason we are prepared to accept a range of explanations offered by people who hear voices, including spiritual ones, and believe it is essential to the process of recovery from overwhelming voices to understand the meaning of the voices to the voice hearer. "
He added
"Whilst we are finding more holisitic solutions to voices that cause mental distress then those offered by psychiatry. It is very important to stress that in our view voices are an aspect of human differentness, rather than a mental health problem. As with homosexuality, which was also regarded by psychiatry in recent times as an illness, the main issue we have to confront is the denial of the human rights to people who hear voices and our main task is to change the way society perceives the experience. Only if can we do this, do we believe psychiatry will change its mind about voices. That is why holding a World Hearing Voices Day is so important"
END
Information for Editors
For more information about World Hearing voices Day go here
For more information about "Accepting and working with voice-hearing: A one-day national conference for professionals and people who hear voices" go here
At the conference topics covered will include:
More information about the host organisation Together can be found here
Read more about the Hearing Voices Movement at Wikipedia
Contact: Paul Baker, INTERVOICE coordinator on + 34 965263097 or email us at: admin@intervoiceonline.org.
Ron Coleman: Recovery an Alien Concept 0
Last updated 11/06/2007
Taken from the preface to "Recovery an Alien Concept", available to purchase from P&P Press
I was brought up in a working class Roman Catholic family and like many boys my age I went through my religious phase in my eleventh year of life. I went to see our parish priest and told him that I wanted to become a priest. Our parish priest at this time was getting on in years and was one of the old school having said more masses in Latin than in English. He was also without doubt a man of God who saw himself as a shepherd and us as his flock. When one among his flock stated they wanted to become a priest, he took them seriously. He took my desire to become a priest seriously and once a week I met with him and two other boys who had also stated a desire to enter the priesthood. In these weekly meeting we would discuss further the teachings of the church, the role of the priest and whether we thought our calling to the priesthood was real. After one such discussion one of the boys stopped coming as he felt he was not being called but was trying to please his family. The two of us that remained were undeterred and continued on with our instruction, fully committed to the idea that some day we would become priests.
These were happy days for me, I was preparing to serve God and I had all the enthusiasm an eleven-year old could muster for my coming tasks. The day that changed my life started the same as any other I went to school and after school I headed for the chapel house for instruction. The housekeeper answered the door, she was near to tears as she told us our parish priest had taken seriously ill earlier in the day, although he survived he was never to return to the parish. (I often wonder what would have happened had he never became ill. Would I now be a priest?) Shortly after this happened a new parish priest arrived, (I will call him Adrian) at first everything was business as usual and I soon relaxed into my normal routine. The next three months went by without incident as far as I was concerned though I noticed that a lot of the altar boys were leaving service before they normally would age wise.
I was very quickly to find the reason why when after Mass one day Father Adrian asked me to come and see him in the vestry, I sauntered over without any thought as to why he wanted to see me after all he was a priest. When I arrived at the vestry Father Adrian asked me to sit down it was at this point that things started to change. He started by asking me if I had any sins that I needed to confess, when I said I did not he called me a liar and said that he needed to pray for me so that I would be forgiven. He knelt beside me and started praying aloud he was saying something about me leading him into sin and that I was evil. As he continued to pray he started moaning and groaning, I was aware that his hand was slowly moving up my leg this went on until he was touching my penis. As this continued I was aware of becoming a spectator in what was happening to me. I became aware of other things around me like the candles that were burning too brightly and his purple vestments were if anything even more purple than usual. I was there but not there those who have been abused will know what I mean, much later in my life I discovered that this is called dissociation and it is the most common form of self-preservation of those who are abused. At the time it did not feel much of a defence to me for inside I screamed at him to stop I also screamed at God for protection but either God was deaf or I never screamed loud enough because he never defended me. When it was over Adrian told me that no one would believe me if I told them what had happened. I left the vestry in a daze and never told anyone what happened that day or the many other days that it was to continue for.
I was trapped for a while within this cycle of abuse, after all who would believe me? Adrian was a priest he stood between people and God, he represented Christ on the earth, the forgiver of sins, the good shepherd. I was an eleven-year old boy, a dreamer and to say anything would brand me a liar. My relationship with this God that I thought I believed in was over. The abuse continued for a few months until I found from somewhere the strength to turn my back fully on the church and with it God. My spiritual and religious phase was over. Time has taught me that this is the pattern with abusers that they are often in positions of trust in the community and they use this position to ply their evil trade in misery and pain. Experience has taught me that the failure to deal with abuse means that the abuse will stay with you throughout your life and in many ways shape your life in terms of future relationships. This is especially true when it comes to trusting friends or life partners. This event more than any other was to shape my life or should I say illness.
If this was the only traumatic life event that I was to go through I believe that I would have survived it and got on and led a fairly normal life. As is often the case it was when I thought that I had turned a corner that life dealt me its foulest hand. As I grew up into adulthood I put the abuse behind me or so I thought and got on with the business of living, it was while I was getting on with life that I met Annabelle. I met her one Saturday night in the pub after I had been playing rugby, when I saw her I knew what love at first sight meant. Being psychotic has nothing on being in love, love is without question the true psychotic experience. Annabelle was an artist, sculpture was her main medium though also she painted and did sketching. In the short time that we were together she taught me many things, she taught me what love was, how to make love and most importantly how to love life. She also taught me to appreciate the arts such as classical music, opera and theatre. With her I began to discover a spiritual dimension to my life though I hasten to add that this was not a religious thing.
Our relationship developed quickly from the torrid passion of new lovers to the passion that consumes those who are indeed soul mates. We spent as much time as we could in each others company often we would sit up through the night talking and planning as couples do. We were planning our life together, this was normality at its best. But like all normality madness was lurking waiting its chance to pounce and consume us and then one day it did.
Like the day I met Annabelle the day our relationship ended was a Saturday, I had been playing rugby and went home with something for both of us to eat. When I got in I called to Annabelle asking her if she wanted tea or coffee, she didn't reply. I went into the living room and she was lying on the couch I asked her again and still got no reply I gave her a shake but she would not wake up. I rushed out of the house to a neighbour and asked them to phone an ambulance. They rushed her to hospital and put her on a life support machine she did not make it and three days later she was pronounced dead. Annabelle had taken her own life I never really found out why but I know that I blamed myself, I don't know why I blamed myself though it was to be many years before I stopped doing so.
When she died a large slice of me died also, I swore that never again would I get emotionally involved with anyone. Like many others I suppressed all of my emotions about Annabelle and her death. I continued on with a semblance of existence that others called life. Like the abuse I choose to pretend it never happened and like the abuse my feelings of grief and loss and hatred of the world festered inside growing and growing waiting for their chance to devour me.
The time came for my emotions to overcome me when I had an accident on the rugby pitch that put me out of the game forever. Barely weeks had passed since I was discharged from hospital (still on crutches) when I heard a voice for the first time. I was in my office waiting for the computer to deliver the results of some data I had inputted when a voice behind me said that I had done it wrong. I looked behind me but there was nobody there. I stopped what I was doing immediately, went to the pub and got drunk, I remember thinking that I was stressed and needed a break.
Within a short six months period the voice had been joined by other voices that spent most of the day screaming at me. I could not focus on my work and the only relief I got was when I had drunk myself into oblivion. Eventually my boss told me I had four weeks to get my act together. Four weeks later I was out of work, losing my home and on my way (though I didn't know it then) to my first encounter with the psychiatric services. In double quick time I became a pitiful sight with an unkempt beard, more often than not dirty clothes and more and more frequently drunk rather than sober.
Eventually I could not take any more and I phoned the Samaritans and after much talking went to see my GP. He ended the consultation with the words "I am going to arrange for you to see a specialist" fine I thought that will take a while, what a surprise I was in for. He took me out of his consulting room and asked me to wait in a small side room in the surgery a few minutes later he returned with a nurse who he told me was going to look after me while he arranged an appointment with the specialist. The only thing I remember about that wait with the nurse was how little she spoke it was as if she was frightened to be in the same room as me.
My short wait ended some three hours later when the GP returned with another man it turned out that this man was the specialist that the GP had contacted. The specialist introduced himself and told me that he was a psychiatrist and that he had come to see me since my GP was concerned about me. It was here that I went through my very first one-hour present state examination, after the interview the psychiatrist told me I was ill and it would be better if I came into hospital for a short time. I told him where to shove his hospital and fled the surgery, three days later I was dragged into the Royal Free hospital where I once again was subjected to the psychiatric interview with the conclusion that I was suffering from schizophrenia.
The psychiatrist there told me that if I took medication then my voices and other symptoms would be eradicated and I would get better. He told me that the medication took about two weeks to work and in no time at all I would be back to something like my old self, he was wrong. Two weeks went by and if anything I was worse not better so I stopped taking the medication and decided to leave. This was when I discovered the real power of the system I was put on a section two of the mental health act, which held me for up to twenty-eight days against my will. A section three this is a treatment order, which allowed them not only to detain me but also to medicate me forcibly if necessary, followed the section two in quick time. This became my new way of life a constant round of illness with short periods of respite (not wellness) in the community.
Over the next ten years I was to spend six of them as an in-patient almost all of them on a section three. In this time I had nearly forty sessions of ECT, tried nearly every neuroleptic on the market and was denied psychological interventions on numerous occasions. Despite the most vigorous of treatment regimes the voices I heard remained as virulent as ever, medication gave me no respite and eventually the volume of medication I was taking was so high that I became little better than a zombie who viewed life through a legalised drug induced smog.
The system did teach me things the main one being how to be a good schizophrenic, I do believe that we learn much about how to be mentally ill in the system. Ten years were to pass before I found a way out the system by then they (the system) had created a perfect schizophrenic. Now on to recovery.
The stepping stones to recovery
Any recovery journey has a beginning, and for me the beginning was my meeting with Lindsay Cooke my support worker, it was her who encouraged me to go to the hearing voices self-help group in Manchester at the start of 1991. It was her not me who believed that a self-help group would benefit me. It was her who saw beneath my madness and into my potential, it was her faith in me that kick started my recovery and it is to her that I owe an enormous debt.
There are other essentials required for a journey to be successful; one of these is the ability to be able to navigate to your desired destination. In this I was fortunate not to have one navigator but many. In this section I will mention only five of them. The first is Anne Walton a fellow voice hearer who at my very first hearing voices group asked me if I heard voices and when I replied that I did told me that they were real. It does not sound much but that one sentence has been a compass for me showing me the direction I needed to travel and underpinning my belief in the recovery process.
The second is Mike Grierson; Mike was the person who navigated me through my first contact both with my voices and with society. He encouraged me to go out and socialise with people who had nothing to do the psychiatric system. He also took me to places like the cinema and classical concerts which reawakened my love for the arts. Mike was not only my social navigator he was also one of the people who helped me to focus on my voices in a way that allowed me to explore my experience.
The third and fourth are Terry McLaughlin and Julie Downs, Terry and Julie were my navigators back to normality, they rekindled my interest in politics and took me into their family without reservation. It was with Terry that I developed much of my early thinking around training and mental health. With Julie i developed training packages and now with my wife Karen I am continuing to develop training packages, which we use to explore the world of mental health.
My fifth person is Paul Baker another of my navigators on the road to recovery, Paul who brought the hearing voices network to the United Kingdom encouraged me to become involved in the network, then when the time was right handed over the development of voices groups to me. To all of my navigators Anne, Mike, Terry, Julie and Paul I owe my sanity.
Navigators require a map or a plan from which to navigate, and I have been fortunate for the people who were my map makers, were Patsy Hage, Marius Romme and Sandra Escher. I do not believe that these three fully understand what they have done. Little did Patsy know when she read the book by Julian Jaynes that the questions this would make her ask were going to affect so many people indeed It is because of her questions that the hearing voices network and resonance and other networks throughout the world exist today. Whether she wants it or not she has a premier place in the history of the hearing voices movement.
Sandra Escher is without doubt the person who made sure that ordinary people could understand the maps that were being made. Her ability to put across the message in language that is accessible to everyone has meant that their work has not remained in the world of academia but has been used by voice hearers from the very beginning. Sandra and Patsy have played a very important part in my recovery.
The final map maker is Marius Romme, Marius who in his own words is a traditional psychiatrist, is without doubt one of the greatest map makers who it has been my good fortune to know. When he listened to Patsy Hage and explored what she was saying it was then in my opinion he stopped being a traditional psychiatrist. When he asserted in public for the first time that hearing voices was a normal experience and that voice hearing was not to be feared he stopped being a traditional psychiatrist. When he continued his work despite being ridiculed and criticised by his peers he stopped being a traditional psychiatrist and in my opinion became a great psychiatrist.
To Patsy Sandra and Marius I only owe one thing and that is my life.
Up to this point I have mentioned nine people who have been participants in one way or another in my recovery journey and therein lies the first stepping stone to recovery; people.
If I were to name all the people who have played a part in my recovery the list would be massive. The other thing about this list would be the fact that the majority on it would not be professionals. One of my fundamental beliefs about recovery is the premise that recovery cannot and does not happen in isolation. Nor can it happen if all our relationships are based on a professional and client interaction. Recovery is by definition wholeness and no one can be whole if they are isolated from the society, in which they live and work.
For many years I had argued that there is no such thing as mental illness this has lead me into some interesting debates with people over the last few years. One of these debates was with Marius Romme, during this discussion it became clear, that Marius was not arguing a case for biological illness, what he in fact was saying was that illness could be expressed as a persons inability to function in society. This I can accept as it means that recovery is no longer a gift from doctors but the responsibility of us all.
This raises the question of whether society is prepared to take any kind of responsibility for the recovery of people with mental health problems. I am of the opinion that they will not, for in our sophisticated culture we too have bought into the notion of a biological explanation for mental health. I suppose that my expectations of society might appear to be to high, but that must be seen in the context of those societies that do accept responsibility for those amongst them who become mad.
For Example in the Aboriginal Culture when someone goes mad the whole tribe comes together to discuss what the tribe has done to cause the person to be mad. Can you imagine this happening in our cultures? I think not. When someone goes mad in our culture it is off to hospital with them. It is not a gathering of the local community that gets together to decide what is wrong with the community. It is a ward round made up of so called experts who get together often without the person concerned being present who decide both what is wrong with the client and how it will be treated. This scenario, alas all to familiar, does not hold out much chance of recovery for the client. It is an impersonal rather than a person centred way of approaching the problem. Within this scenario recovery is objective not subjective and the person is no longer a real factor in the process.
If people are the building bricks of recovery then the cornerstone must be self. I believe without reservation that the biggest hurdle we face on our journey to recovery is ourselves. Recovery requires self-confidence, self-esteem, self-awareness and self-acceptance without this recovery is not just impossible it is not worth it.
We must become confident in our own abilities to change our lives; we must give up being reliant on others doing everything for us. We need to start doing these things for ourselves. We must have the confidence to give up being ill so that we can start being recovered. We must work at raising our self esteem by becoming citizens within our own communities despite our communities if need be. We are valued members of our societies and we must recognise our value. We need to recognise our own faults the system may have created our diagnoses, but often it is ourselves who reinforce it. We need to be aware of our learned behaviour, this should be part of our old lives. We need to change those behaviours that still trap us in our roles as patients. We need to accept and be proud of who and what we are, I can honestly say my name is Ron Coleman and I am psychotic and proud. This is not a flippant statement, this is a statement of fact.
I am convinced that when we grow confident about who and what we are; we can then be confident about who and what we might become. For me these four selfs; self-confidence, self-esteem, self-awareness and self-acceptance are the second stepping stone on the road to recovery.
The third step is closely related to the second and it is rooted in our own status. I believe that we ourselves have a great deal of say in our own status. We can choose to remain victims of the system, we can choose to continue to feel sorry for ourselves, we can choose to remain the poor little ill person who requires twenty-four hour care from professionals. On the other-hand we can choose a different direction, we can choose to stop being victims and become victors, we can choose to stop feeling sorry for ourselves and start living again, we can choose to stop being the poor little ill person and start the journey of recovery. This for me is the third stepping stone choice. When we thought of ourselves as ill it was easy to let others make our choices. The recovery road however demands that we not only make our own choices but that we take responsibility for all our choices good and bad. As we make choices we will make mistakes, We must learn to see the difference between making a mistake and having a relapse. For it is the easy option to go running back to the psychiatric system when we make mistakes. Rather than face our own weaknesses we fall into the trap of blaming our biology rather than our humanity. If people are the building blocks of recovery and self is the cornerstone then choice is the mortar that holds the bricks together. There is one other stepping stone in the recovery process and that is ownership. Ownership is the key to recovery, we must learn to own our experiences whatever they are. Doctors cannot own our experiences, psychologists cannot own our experiences, nurses, social workers support workers, occupational therapists, psychotherapists, carers, and friends. Even our lovers cannot own our experiences. We must own our experiences. For it is only through owning the experience of madness can we own the recovery from madness.
The journey through madness is essentially an individual one, we can only share part of that journey with others, most of the journey is ours and ours alone. It is within ourselves that we will find the tools, strength and skills that we require to complete this journey for it is within ourselves that the journey itself takes place.
Recovery has become an alien concept, yet nothing I have talked about so far is based on rocket science, rather it is based on common sense, it is not anything new, it is merely a reiteration of a holistic view of life. We need to realise that sometimes we, all of us make things much more difficult than they need to be. It is almost as if we need life to be a rocket science that we can never understand. We seem to spend much of our time making the complexities of living even more complex through our appliance of scientific objectivity rather than exploring our lives through the simple mechanism of personal subjectivity. The time has come to have a close encounter with an alien concept it is time for recovery.
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About INTERVOICE 2
Page last updated 07/03/2008
Welcome to
The International Network for
Training, Education and Research into Hearing Voices
Introduction:
Our beginnings:
Our aims:
Our values:
We have found there are many people who hear voices, yet are not troubled by them or have found their own ways of coping with them outside of psychiatric care. This is very significant as it shows you can hear voices and remain healthy.
However, there are also significant numbers of voice hearers who are overwhelmed by the negative and disempowering aspects of the experience. Many are diagnosed as having a serious mental health problem such as schizophrenia – a harmful and stigmatizing concept, in our eyes.
The experience of hearing voices prevents some people from living a fulfilled life in society (especially those in psychiatric and social care) and can lead to having a very poor quality of life. We seek to enable voice hearers troubled by their experience to change their relationship and attitude to their voices and to take up their lives again. We also want to ensure that our innovatory approach is better known by professionals, family members and friends.
We have spent the last 20 years trying to better understand why some people can cope with the experience and others can’t. We have discovered that those people who are not able to cope with their voices, on the whole have not been able to cope with the traumatic events that lay at the roots of their voice hearing experience.
Significantly, the search for ways of doing this began with the people who were best able to provide the answers, the voice hearers themselves including psychiatric patients, and equally importantly, people who heard voices who had never needed to seek the assistance of psychiatric services.
Our network focuses on solutions that improve the life of voice hearers in the knowledge that these methods have been co-developed by voice hearers and professionals.
The most important factor in the success of our approach is the importance placed on the personal engagement of the people involved. This means that everybody is considered an expert of their own experiences. We see each other first as people, secondly as equal partners and thirdly as all having different but mutually valuable expertise to offer This can either be through direct experience of hearing voices or having worked with voice hearers (and/or wanting to).
We now know, because we have met a lot of voice hearers who have recovered from the stress caused by their voices, to be sure that understanding the meaning of the voices is of great significance. It is important, therefore, that we promote this information in a more systematic way to ensure that our message is clear and coherent.
One outcome of this is the development of this online community.
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In August 1997 a meeting of voice hearers and mental health workers was held in Maastricht to discuss developing the further promotion and research into the issue of voice hearing. We came to the conclusion that to continue to make progress it would be necessary to establish a formal organisational structure to provide administrative and co-ordinating support to the wide variety of initiatives in the different involved countries. The new network was called INTERVOICE (The International Network for Training, Education and Research into Hearing voices)
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INTERVOICE aims to
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The network therefore focuses on facilitating relevant assistance and solutions that improve the life of voice hearers in the knowledge that these methods have been co-developed by voice hearers and professionals.
It is most important to us that the network embodies these guiding principles and is structured in such a way that it safeguards and develops them amongst founding and future members.
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Time to listen to the voices again, The Herald, 03/10/2006 (Scotland) 1
Nice account of hearing voices research from "The Herald", a national newspaper from Scotland.
Time to listen to the voices again, 03/10/2006
Intervoice Meeting in Denmark, 31st May - 1st June 2007 0
The Danish HV network met recently and decided the dates for Intervoice '07.
This will most start with a one-day conference on monday 29th May (to be confirmed) for those who may be interested, followed by a free day for sightseeing/rest, and then Intervoice thurs 31st May & friday 1st June.
The venue will be Copenhagen (outskirts of) and as usual the hosts will provide two nights accommodation (with breakfast) for two members from each country represented.
Trevor Eyles on behalf of the Danish Hearing Voices Network
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INTERVOICE meeting held in Dundee, Scotland 1st – 3rd June 2006 0
INTERVOICE meeting held in Dundee 1st – 3rd June 2006 at the Verdant Works: A report
1. Introduction: The INTERVOICE steering group meeting was attended by 85 delegates from 15 countries. This makes it one of the best attended INTERVOICE meetings in recent years. New countries represented included Australia, New Zealand and Palestine. The two day meeting started with a Scottish bag-piper welcoming the delegates and ended with a wonderful BBQ, in between we had two days of intensive discussions on a wide range of topics, whilst also finding out all the latest developments from all the member countries (see below).
Also we cannot forget the receptions held at the Dundee Hearing Voices Network offices and the Verdant Works Museum with live music. Our grateful thanks go to the Scottish Hearing Voices Network and to Ron and Karen Coleman for organising the event and for making everyone so welcome.
2. Reports from INTERVOICE member countries
Paul Baker, who lives in Alicante, Spain, provides support for INTERVOICE, such as sending out a newsletter from time to time and more recently developing an online discussion forum to help develop contact between INTERVOICE members and friends. Paul was ably assisted in setting up the online forum by Frans Wever, from Holland and Caroline von Taysen, from Germany. The result has been a very busy forum (see below for more information), which already has almost 200 members, although the forum is still in development and there have been some initial problems, the signs are good that this will become a very useful way to continue contact between members throughout the year.
England: We have learnt with sadness that Jon Williams died on the 5th of February. Jon will be remembered with great affection by many people throughout the world. In particular he will be held in great respect for his stewardship of HVN through some of its most difficult years. The National Hearing Voices Network, based in Manchester continue to be very active with the support of their co-ordinator Julie Downs. The Network has recently moved into new office premises. There are now over 180 self-help groups, a telephone helpline and training and education initiatives. HVN publishes a quarterly newsletter and has its own website. London also has its own development worker, Jacqui Dillon, to help co-ordinate voices groups across the capital, London recently received a large grant from the governement to develop work in London.
Scotland: Scotland has a National network, local groups and has been organising regualr meetings. The Network has an active steering group, including Pat Webster, Roddy Gordon, Audrey Reid, Maria Griffins and Ron Coleman. Roddy Gordon and Babs Johnston continue to be active in Scotland too. Dundee Hearing Voices Network have just open their impressive new offices, with beautiful work and creative areas it is a place that reflects the values of the voice hearers who run it.
Wales: Has a National network and has been organising meetings. The work is supported by Hywell Davies
Finland: This is the country that, after England, was the first to translate and publish “Accepting voices” into Finnish. There are now 23 self-help groups in Finland, the Association for Voice Hearers has its own office with two part time administrators. The Association organises seminars (4 in 2005) and is activley promoting their work and ideas through the media and by working with other organisations. They publish 6 newsletter a year to keep their membership informed.
Germany: Has a National network of 100 members, has its own office and has organised two conferences in Berlin. Sadly we have to announce that Hannelore Klafki, died recently from a cerebral accident, which was sudden and completely unexpected. It was Hannelore Klafki, who started the activities in Berlin and organised the German Network. Everybody who knew her is very sad, because she was such a wonderful person, creative and active and a good friend to so many people. Antje Muller who has been involved with the Network for many years has taken over the co-ordination of the German Network. Monica Hoffman has also supported the network since the beginning and does so to this day. Andreas Gehrke wrote an interesting book about his voice hearing experience. ‘Aufbruch aus dem Angstkafig – anus Verlag’. It is only available in German at the moment. Perhaps somebody could find the means to translate it into English? Also, as I said earlier, Caroline von Taysen has been involved in setting up and supporting the new INTERVOICE Online Discussion Forum.
Holland: Resonance is still very active, has 200 members, publishes a well organised periodical and holds two yearly meetings. It has a number of contact people are available for telephone information about hearing voices. There are still only a few self-help groups. Recently, the book of Ron Coleman “Recovery an Alien Concept” has been is translated into Dutch, entitled ‘Herstel kan dat wel’. Sandra Escher has also finished her research into the experience of children hearing voices and has written her PhD. She became Dr. Escher in May last year. Resonance now has its own website.
Austria: In Linz, Chuck Schneider and Marlene Weiterschein are active with supporting self-help groups and running a training program. Whilst in Vienna, Professor Katschnig and Professor Michaela Amering organised a big congress held in January 2003 in Vienna with 600 participants.
Italy: Marcello Maccario is now helping to co-ordinate a hearing voices movement in Italy with the help of regular appearances by Karen & Ron. There are now more centres in Italy (Savonna, Milan, Rome, Bologna, Parma and Trento in the North with Sicily coming on stream soon). Ron’s book “Recovery an Alien Concept” has recently published in Italian by Manifesto Libro. Working with Voices 2 is now translated into Italian as well. Activities in Prado (near Florence) continue, with conferences held on a regular basis, ably organised by Pini Pini and Donatella Miccinesi.
Sweden: There are two active networks in Stockholm and in Lund. In Lund, Maths Jesperson leads the activities, whilst in Stockholm, Amy Rohnitz and Siv Wetterberg are also very active. Alain Topor, who originally stimulated the approach in Sweden and co-ordinated the translation and publication of ‘Making Sense of Voices’ into Swedish, has also started a new research program on recovery. “Managing the contradictions on recovery”, is the title of his Ph.D, published in 2003.
Norway: activities in Norway depend mainly on a number of interested individuals. We had two congresses in Oslo, the first held in Molden, initiated by Geir Fredriksen, who has almost finished publishing a book on his psycho-drama work with people who hearing voices. In Oslo, Marit Borg and Siri Blesvik are involved in a EEG project, which involves users in training professionals about user perspectives. It is project involving six countries and also includes INTERVOICE members, Mervyn Morris from Birmingham and Harrie van Haaster & Sandra Escher from Holland. Alain Topor from Sweden is also involved.
Switzerland: Theresia Krummenacher has organised two, three day training programs for psychiatrists in psychiatric clinics in Basel and Geneva. She also founded a self-help group in Geneva and has organised the translation of “The Voice Inside”.
Denmark: has become very active since the first congress in Arhus, organised by Karl Bach and two subsequent conferences organised by Inger Mosbaek-Greve, also held in Arhus. There are active groups of professionals working with voice hearers in Herning organised by Nina Stenshoj and one group run by Jorn Erikson and his wife Ann in Lungby, near Copenhagen. In Arhus, Trevor Eyles now has a full time job working with a voice hearing project. The book ‘Making Sense of Voices’ has also been translated into Danish. They now have their own website and interest in hearing voices work is growing rapidly.
Spain: There is new interest in Spain where Prof Dr. Manuel Gonzalez de Chavez Menendez has initiated the translation of ‘Making Sense of Voices’ into Spanish. This edition was published in December 2005 and presented at a course in Madrid with 800 participants. Interest has been expressed in setting up a group in Gijon, Asturias.
Australia: Work is developing in Australia, mainly around Perth in Western Australia and the Western Australia Hearing voices Network will be launched in May, supported by the Richmond Fellowship who have seconded a part time development post to help the work develop further.
New Zealand: Arana Pearson is busy developing a national hearing voices network. Whilst Vanessa Bevan has now completed her research into voice hearing experiences in New Zealand.
Palestine has 2 voices group running in Bethlehem Hospital , with new groups being set up in Ramala & Hebron and hearing voices training also carried out in the Gaza Strip.
We are also aware of work on voice being carried out in Ireland.
In the USA, there is a group in Madison, Wisconsin.
Work continues in Japan.
3. Presentations/Discussions
Led by Gier Fredericksen and Ronny Nilsen from Norway
led by Julie Downs and John Robinson form the Hearing Voices Network, England
led by Vanessa Bevan from New Zealand and Marius Romme from the Netherlands
led by Jakob Litschig and Verana Barfuss from Switzerland.
Led by Joanna Fox from the Anglia Ruskin University in Cambridge
Discussion led by Caroline Von Taysen and Paul Baker
4. The next INTERVOICE meeting
will be held in Denmark in 2007, dates and venue to be confirmed and a meeting for voice hearers who are members of INTERVOICE is also being planned.
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Information on national initiatives across the world 2
Page updated 10/03/2008
We thought it would be useful to tell you something about the groups who are promoting the hearing voices approach and in the different countries that have become involved so far.
This section will be regularly updated.
Denmark: Stemmehørernetværket i Danmark
England: National Hearing Voices Network
Finland: Suomen Moniääniset ry
Germany: Netzwerk Stimmenhören
Ireland: Hearing Voices Ireland
Scotland: National Hearing Voices Network
Wales: National Hearing Voices Network
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